Advance Care Planning in Permanent Supportive Housing
Advance care planning helps people plan for medical care that aligns with their wishes in the event that they become seriously ill and cannot speak for themselves or at the end of life. Through this process, people can choose someone they trust to make decisions on their behalf, such as a friend or family member, and document the kind of care they would want to receive.
Adults who have experienced homelessness face high rates of illness and premature death, yet prior research shows that few have discussed or documented their ACP wishes. One way to reach this group is by offering ACP in permanent supportive housing communities for older adults, but limited staffing and resources can make these programs difficult for providers to run.
In this randomized controlled trial, BHHI researchers are:
- Measuring the effectiveness of group vs. one-on-one sessions among older adults living in PSH.
- Working closely with a Community Advisory Board (CAB)—PSH residents, staff members, and organizational leaders—to explore challenges and solutions.
Once complete, this research will help inform the design and implementation of future ACP program in PSH buildings.
Study Background Empowering Formerly Homeless Older Adults to Engage in Advance Care Planning in Permanent Supportive Housing (ACP-PSH): A Randomized Controlled Trial received a five-year NIA notice of Award on April 1, 2023. Beginning in April 2023, Principal Investigators, Drs. Margot Kushel, Margaret Handley, and Rebecca Sudore, along with the team at BHHI and the Department of Geriatrics, began planning to launch the trial in Permanent Housing Sites (PSH) in San Francisco and Alameda counties. Since January 2024, BHHI team members have been visiting PSH sites and enrolling individuals aged 50 and older into the study. Participants are randomized to receive the intervention either in a group or one-on-one setting with our research staff. Participants complete 4 surveys in a 6-month period. The goal is to recruit 650 participants by March 2027. |